TY - JOUR
T1 - Experiences of family carers in providing care to children with intellectual disabilities in India
T2 - A qualitative evidence synthesis
AU - Cithambaram, Kumaresan
AU - Corby, D.
AU - Rajendran, Shankar Shanmugam
N1 - Publisher Copyright:
© 2024 The Author(s). Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.
PY - 2024/9
Y1 - 2024/9
N2 - Background: India has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India. Methods: A qualitative evidence synthesis was undertaken, searching databases such as MEDLINE, CINAHL, Web of Science, and PsycInfo up to October 2023. Grey literature was also searched for unpublished studies, with two reviewers assessing methodological quality. Eleven eligible studies, mostly qualitative in design, were included in the review. The data synthesis followed a thematic approach. Results: The synthesis found five themes representing family carers' experiences and perspectives. These were ‘resilience and acceptance’, ‘parental response’, ‘care dynamic’, ‘preparing for transition to adulthood’ and ‘parental advocacy’. Conclusion: Family carers hold diverse views, while almost all consider providing care complex and challenging, with few positive experiences.
AB - Background: India has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India. Methods: A qualitative evidence synthesis was undertaken, searching databases such as MEDLINE, CINAHL, Web of Science, and PsycInfo up to October 2023. Grey literature was also searched for unpublished studies, with two reviewers assessing methodological quality. Eleven eligible studies, mostly qualitative in design, were included in the review. The data synthesis followed a thematic approach. Results: The synthesis found five themes representing family carers' experiences and perspectives. These were ‘resilience and acceptance’, ‘parental response’, ‘care dynamic’, ‘preparing for transition to adulthood’ and ‘parental advocacy’. Conclusion: Family carers hold diverse views, while almost all consider providing care complex and challenging, with few positive experiences.
KW - children
KW - family carers
KW - India
KW - intellectual disabilities
KW - quality of care
UR - http://www.scopus.com/inward/record.url?scp=85197667285&partnerID=8YFLogxK
U2 - 10.1111/jar.13269
DO - 10.1111/jar.13269
M3 - Review article
C2 - 38979666
AN - SCOPUS:85197667285
SN - 1360-2322
VL - 37
JO - Journal of Applied Research in Intellectual Disabilities
JF - Journal of Applied Research in Intellectual Disabilities
IS - 5
M1 - e13269
ER -