A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial

Christopher P. Dwyer, Anusha Moses, Fionnuala M. Rogers, Dympna Casey, Robert Joyce, Sinéad M. Hynes

    Research output: Contribution to journalArticlepeer-review

    2 Citations (Scopus)

    Abstract

    The current study-within-a-trial explored individuals’ decisions to decline participation in research trialling a chronic illness-focused therapy (i.e. multiple sclerosis). Four themes were identified from seven semi-structured interviews with participation decliners and were confirmed by the host trial’s Patient & Public Involvement (PPI) panel: acknowledgement of the value of research; ‘fit’ of the study; misinterpretation of participant information; and ‘ignorance is bliss’ – discussed in light of theory and research. This study-within-a-trial extends research on trial recruitment and participation decline; while also suggesting that PPI can be utilised in both a practical and impactful manner.

    Original languageEnglish
    Pages (from-to)374-387
    Number of pages14
    JournalJournal of Health Psychology
    Volume28
    Issue number4
    DOIs
    Publication statusPublished - Mar 2023

    Keywords

    • cognitive occupation-based programme for people living with multiple sclerosis (COB-MS)
    • decliner
    • patient & public involvement
    • recruitment
    • study-within-a-trial

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